Neurological Symptoms of Multiple Sclerosis: A Personal Journey

Multiple Sclerosis (MS) is a complex neurological disease that can manifest in a multitude of ways. My journey with MS began long before my official diagnosis on May 4, 2006, at the age of 28. The early signs had been subtle but insidious, leading to misdiagnoses and a sense of yearning for a definitive answer.

Early Signs and Missed Diagnoses

Since early childhood, there were small signs that something was amiss. I had low energy and poor coordination, which many deemed as minor issues. By the age of 16, I had hinted at MS to my doctor, but nothing was done. At 20, a series of peculiar events led me to see at least five different doctors, each giving a different diagnosis ranging from pain to anxiety. None of the proposed diagnoses felt right, and by then, I was starting to believe that doctors were more concerned with their appointment-based income rather than my health.

Awakening of Symptoms

At the age of 22, I began to say things that made no sense, entirely unprovoked and in no way related to my surroundings. By 24, working at an accounting firm, I was struggling with memory and concentration. Simple tasks became challenging, and I faced the realization that I couldn’t walk straight without repeatedly bumping into walls. A senior accountant at my firm recommended I see a doctor, but my history of seeing around 25 doctors who had dismissed my requests for MS tests weighed heavily on me.

Diagnosis and Treatment

At 26, I woke up with half of my body completely numb. The sensation ran from the top of my head to the tips of my toes, creating a stark divide between feeling and numbness. Slurred speech, drooling, double vision, and a lack of balance were other significant symptoms. Despite all these signs, doctors at the time suggested everything was fine, and it was only after testing and a lumbar puncture that a specialist confirmed my diagnosis: Multiple Sclerosis. However, the initial reaction from medical professionals was alarmist, suggesting that I would die within hours).

Personal Triumph and Continued Research

The road to recovery wasn’t easy. It took three years of chemotherapy and a variety of medications, along with extensive research to find a solution that worked. By weaning myself off all medications and relying on high-dose antihistamines, specifically Tavist, I experienced a remarkable turnaround. Within 20 minutes of taking Tavist, I was able to regain balance, stop tremors, and even run up and down stairs. I documented my findings in a detailed report and submitted it to the University of Washington, promising that it would be reviewed by an astrophysicist, neurologist, postdoc, and anyone who was "hungry" for new inventions to bring them to market.

Challenges and Future Prospects

However, my progress was met with resistance from Big Pharma, as Tavist was removed from the shelves, officially disrupting my efforts to help others. But the journey continues, and I am still here, nineteen years later, driven by a desire to make a difference for those suffering from MS.

Conclusion

The journey with Multiple Sclerosis is both challenging and humbling, but it has also been a turning point for me. Even now, 19 years later, I am inspired by my journey and continue to research and test new solutions that could help others suffering from MS.